‘Sometimes I’m on the phone all morning, to get a referral.’ Maria and Paul have two sons and one daughter. Marlie suffers from the Vici Variant Syndrome and has multiple disabilities. The life expectancy of children with this syndrome is low. Read part 1, part 2 and part 3 here. Maria lists what caring for Marlie, …
Maria: ‘I used to be shy, but having to fight for Marlie made me assertive.’ Maria and Paul have two sons and one daughter. Marlie suffers from the Vici Variant Syndrome and has multiple disabilities. The life expectancy of children with this syndrome is low. Read part 1 and part 2 here. After …
Maria: ‘We love our daughter and we’ll keep fighting until the end.’ Maria and Paul have two sons and one daughter. Marlie suffers from the Vici Variant Syndrome and has multiple disabilities. The life expectancy of children with this syndrome is low. Read part one here. When Maria and Paul learn their youngest child …
Part 1: When your child is incurably ill ‘They told us that the life expectancy of those children is low. Every day feels like a bonus’ When Maria Feenstra gave birth to her third child three years ago she felt the most lucky woman on earth. With two older sons she finally received the …
‘Vroeger was ik verlegen, maar nu assertief omdat ik voor Marlie op moet komen.’ Maria en Paul hebben twee zonen en een dochter. Marlie lijdt aan het Vici Variant Syndroom en is daardoor meervoudig beperkt. De levensverwachting van kinderen met dit syndroom is laag. Lees hier deel 1 en deel 2. Na die verbijsterende diagnose …
Maria: ‘Wij houden van onze dochter en we blijven voor haar vechten tot de laatste snik’ Maria en Paul hebben twee zonen en een dochter. Marlie lijdt aan het Vici Variant Syndroom en is daardoor meervoudig beperkt. De levensverwachting van kinderen met dit syndroom is laag. Lees hier deel 1. Als Maria en …
Deel 1: Als je kind ongeneeslijk ziek is ‘Ze zeiden dat deze kinderen niet lang te leven hebben. Elke dag is er eentje extra.’ Als Maria Feenstra drie jaar geleden van haar derde kind bevalt, lijkt het geluk haar toe te lachen. Na twee jongens heeft ze een gezond meisje gekregen. Super trots ligt …
Maria: ‘We love our daughter and we’ll keep fighting until the end.’ Maria and Paul have two sons and one daughter. Marlie suffers from the Vici Variant Syndrome and has multiple disabilities. The life expectancy of children with this syndrome is low. Read part one here. When Maria and Paul learn their youngest child …
Part 1: When your child is incurably ill ‘They told us that the life expectancy of those children is low. Every day feels like a bonus’ When Maria Feenstra gave birth to her third child three years ago she felt the most lucky woman on earth. With two older sons she finally received the …